Protect Medicaid for I/DD Services
The “One Big, Beautiful Bill” (OBBB) Act has been signed into law—bringing with it significant cuts to federal Medicaid funding. This is a deeply disappointing moment. Medicaid is a lifeline for people with intellectual and developmental disabilities, making possible the services and supports that foster independence, inclusion, and quality of life. Thank you for raising your voice these past few weeks. Your advocacy matters. Now is the time to rest, regroup, and return ready to continue the fight for disability rights together.
—Learn more about the “One Big, Beautiful Act.”
–Connect with elected officials on how they voted.
The Impact on State Services
The passage of the “One Big Beautiful Bill Act” is expected to prompt significant changes in the New York State Legislature, as leaders work to address the impact of cuts to Medicaid, SNAP, and other essential programs affecting vulnerable New Yorkers.
Governor Hochul recently issued a statement about New York’s response to OBBB. In a recent LinkedIn post, OPWDD Commissioner Baer explained, “New federal cuts undermine our ability to provide the greatest quality support for people with developmental disabilities, removing the very safety net health services and benefits people with developmental disabilities rely on for physical wellness and safety in the community. Our resolve and our advocacy for the disability community, however, will only continue to grow.”
Updates are anticipated in the FY2025–26 Budget by the NYS Legislature in the coming months. View the original budget and stay tuned for ways to advocate for programs that support people with intellectual and developmental disabilities (I/DD).
Additional Issues to Consider
- Support SSI Savings Penalty Elimination Act
The SSI Savings Elimination Act was recently reintroduced. For over 30 years, the Supplemental Security Income (SSI) asset limit has been set at $2,000, while the cost of living has risen dramatically. This outdated rule leads to millions of people with disabilities living at the poverty line due to an inability to save for emergencies or a more financially secure future. Take Action.
- Advance Federal Recognition of the DSP Role
The U.S. Senate passed the “Recognizing the Role of Direct Support Professionals (DSPs) Act” (S.1332/ H.R. 2941), which requires the Office of Management and Budget to consider updating the Standard Occupational Classification (SOC) and recognizing the DSP role as a distinct profession. This leads to data collection and ideally more robust funding. The bill now goes to the House Representatives. Send an email to your member of Congress.
Stay Connected
- Sign up for AHRC’s Regional Advocacy Groups―to connect with fellow advocates and educate candidates on both sides of the aisle about disability rights.
- Find out who your elected officials are.
- Set up a “lobby visit” with your representatives.
- Share our social media posts (Facebook, LinkedIn, Instagram).